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DebRA
International recognises the importance of maintaining close working relationships with
health care professionals treating patients with EB.
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The
International EB Forum has been created as a means of assisting those professionals to
communicate with each other, both within their own discipline and with other complementary
specialisms. The International EB Forum also houses the Officers' Forum which allows
leaders of each national group to network and share knowledge.
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The care of a new baby with EB. The first in a series of Multilingual information
leaflets for you to download.
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One of the main
functions of DebRA International is to develop treatments for EB by coordinating the
research programmes of the member groups and by facilitating close collaboration with the
principal EB research teams. The main focuses
of current research are gene therapy, cancer in EB, wound healing and clinical research
aimed at symptom relief. |
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DebRA International wishes to ensure that high
quality information on the management of EB is available in an understandable form to
people living with the condition. Information
produced by the national groups is placed on the website and updated regularly.
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