From October 3 to 6, the town of Estepona (Málaga) became a hub of support, knowledge, and connection as DEBRA Spain/Piel de Mariposa hosted its annual National Meeting. This event serves as a vital link between families affected by Epidermolysis Bullosa (EB) and healthcare professionals, creating a space to share experiences, expertise, and the latest advancements in research.
By bringing families, medical experts, and researchers into the same space, the event fosters a sense of belonging, understanding, and empowerment. Families not only receive valuable medical insights but also connect with others who truly understand their journey—helping to combat isolation and build a strong, supportive community. The National Meeting ensures that no one faces EB alone, reinforcing the message that there is a dedicated community ready to help when it is needed most.
Through these annual gatherings, DEBRA Spain continues to strengthen bonds, advance research, and advocate for improved care, making a lasting impact on those affected by EB and their loved ones.
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