The Yasmin El Samra Foundation, also known as DEBRA Egypt, plays a vital role in supporting individuals with epidermolysis bullosa (EB) in Egypt. Founded by Hanaa El-Sadat in 2014, the organization is dedicated to raising awareness about this rare genetic skin disorder and providing comprehensive care for those affected.
As they celebrate the International Day of Rare Diseases on February 28th 2025, they emphasize their commitment to managing around 400 cases of EB and offering essential medical support, resources, and advocacy for patients and their families. This day serves as a reminder of the importance of fostering community engagement and promoting research to improve the quality of life for individuals living with EB.
Together, they strive to create a more informed and compassionate society regarding rare conditions. Their motto, "Alone, we can do a little; together, we can do a lot," encapsulates their belief in the power of collaboration and community support in making a significant difference in the lives of those affected by EB.
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