NEWS

DI has received the EURODIS Member Award for the support of the rare disease community affected by conflicts and natural disasters.

The video demonstrates the sterling work by the group to support its members and EB patient community in times of extreme adversity.

Orphan Diseases of Ukraine received the EURORDIS Black Pearl Award: United for Ukrainians Living with a Rare Disease.

Maria Korosta, a paramedic living in Korost, a village in Rivne Pblast, Ukraine with her 2 boys Maksym (13) and Mykola (8)

Ukraine - a mother's note of hardship and hope