NEWS

Jan 31

DEBRA groups hold COSEB workshop: working towards harmonization of outcomes in EB

The COSEB workshop was held by the COSEB Steering committee and DEBRA research managers of Austria, France, Ireland, Spain, and the UK.

Jan 10

NEW! Neonatal Care in EB: a Clinical Practice Guideline now published

It highlights management priorities in neonatal EB care and provide clinicians access to recommended treatment and preventative care options

Dec 21, 2023

Last call to get patients involved in the GRIDD study

The online survey takes 10-20 minutes to complete and is open only until December 31, 2023.

Dec 20, 2023

DEBRA UK's grant call for 2024

UK and international applications are invited from 1st February – 31st March 2024 for DEBRA UK project grant and small grant award...

Dec 15, 2023

New international research projects from DEBRA Austria and EB Resnet

Contracts for two new research projects have been successfully issued by EB Resnet 2022.

Aug 21, 2023

Building smiles and empowering Butterfly Children- research and webinar on oral health and QoL

DEBRA Indonesia hosted a free webinar to increase awareness and knowledge of oral and dental health for EB patients

Aug 21, 2023

DEBRA Spain's work in funding research, international collaboration, and EB healthcare

DEBRA Spain are delighted to announce they will be dedicating €100,000 to a research project to develop a topical gel to treat RDEB wounds.

Aug 13, 2023

DEBRA UK announces its first approved drug repurposing clinical trial

This clinical trial will see an existing licensed treatment for psoriasis clinically tested on children and adults with severe EB simplex

Jul 14, 2023

LifeArc and DEBRA Austria launch £2.5m funding call for repurposing therapies for EB

This Special call will seek innovative proposals to develop therapeutics for severe unmet needs that can be brought rapidly to EB patients.

May 3, 2023

DEBRA Chile holds 2nd Research Day for EB patients and families

DEBRA Chile holds 2nd Research Day for EB patients and families.

Apr 30, 2023

New clinical trials online tool goes live

EB Research Network has created a new online tool to make tracking of clinical trials easier

Mar 10, 2023

DEBRA Ireland launches an EB Expert Panel to help shape its support and research priorities

An EB Expert Panel was launched by DEBRA Ireland to help shape their support and research priorities.

Jan 6, 2023

Remembering Prof Jouni Uitto

It is with a heavy heart that we share the news that a great legend in dermatology, Dr Jouni Uitto, passed away recently.

May 7, 2021

Take part in an international research study on burden and resources in EB - online survey

Take the survey in English: https://survey.sfu.ac.at/EB2021/?q=E_Qnr Take the online survey in German: https://survey.sfu.ac.at/EB2021/?q...