NEWS

The COSEB workshop was held by the COSEB Steering committee and DEBRA research managers of Austria, France, Ireland, Spain, and the UK.

It highlights management priorities in neonatal EB care and provide clinicians access to recommended treatment and preventative care options

The online survey takes 10-20 minutes to complete and is open only until December 31, 2023.

UK and international applications are invited from 1st February – 31st March 2024 for DEBRA UK project grant and small grant award...

Contracts for two new research projects have been successfully issued by EB Resnet 2022.

DEBRA Indonesia hosted a free webinar to increase awareness and knowledge of oral and dental health for EB patients

DEBRA Spain are delighted to announce they will be dedicating €100,000 to a research project to develop a topical gel to treat RDEB wounds.

This clinical trial will see an existing licensed treatment for psoriasis clinically tested on children and adults with severe EB simplex

This Special call will seek innovative proposals to develop therapeutics for severe unmet needs that can be brought rapidly to EB patients.

DEBRA Chile holds 2nd Research Day for EB patients and families.

EB Research Network has created a new online tool to make tracking of clinical trials easier

An EB Expert Panel was launched by DEBRA Ireland to help shape their support and research priorities.

It is with a heavy heart that we share the news that a great legend in dermatology, Dr Jouni Uitto, passed away recently.

Take the survey in English: https://survey.sfu.ac.at/EB2021/?q=E_Qnr Take the online survey in German: https://survey.sfu.ac.at/EB2021/?q...