NEWS

Oct 7, 2021

NEW! Physiotherapy for EB: clinical practice guidelines

We are delighted to announce the publication of the "Physiotherapy for epidermolysis bullosa: clinical practice guidelines" in the...

May 20, 2021

Sesión virtual para pacientes y familias dedicada al proyecto sobre EB de Rare Commons

May 7, 2021

Take part in an international research study on burden and resources in EB - online survey

Take the survey in English: https://survey.sfu.ac.at/EB2021/?q=E_Qnr Take the online survey in German: https://survey.sfu.ac.at/EB2021/?q...

Mar 13, 2021

People with EB in Brazil have the opportunity to access genetic sequencing tests free of charge

With 28th February 2021 marking Rare Disease Day, DEBRA Brasil and Illumina have joined forces to launch a pioneering and high impact...

Jan 14, 2021

Meet the team behind the creation of the supporting sexuality for people with EB CPG

Every CPG published is the result of 18-24 months of hard work and dedication by a volunteer panel of clinical and patient experts.

Jan 8, 2021

NEW! Supporting sexuality for people living with EB CPG now published

The "Supporting sexuality for people living with EB: clinical practice guidelines" have been published!