NEWS

Jan 31

DEBRA groups hold COSEB workshop: working towards harmonization of outcomes in EB

The COSEB workshop was held by the COSEB Steering committee and DEBRA research managers of Austria, France, Ireland, Spain, and the UK.

Aug 21, 2023

DEBRA Spain's work in funding research, international collaboration, and EB healthcare

DEBRA Spain are delighted to announce they will be dedicating €100,000 to a research project to develop a topical gel to treat RDEB wounds.

May 31, 2023

DEBRA Spain works to ensure families receive the best possible level of care

From appealing for greater healthcare professional presence and attending the paediatric palliative care conference to 31 family visits.

Jan 30, 2023

DEBRA Mexico's 1st EB Health Workshop

DEBRA Mexico's 1st EB Health Workshop. This workshop reflects the commitment of the global EB community to work together to promote health,

May 20, 2021

Sesión virtual para pacientes y familias dedicada al proyecto sobre EB de Rare Commons

Apr 22, 2021

Únete a Rare Commons para compartir tus experiencias y ayudar a mejorar el conocimiento de la EB

Rare Commons es un proyecto de investigación del Hospital Sant Joan de Déu de Barcelona que se centra en el estudio biomédico de las...