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NEWS
NEW! Neonatal Care in EB: a Clinical Practice Guideline now published
It highlights management priorities in neonatal EB care and provide clinicians access to recommended treatment and preventative care options
Jan 10, 2024
In memoriam: Lisa Brains
It is with a heavy heart that we share the news that Lisa Brains, born with recessive dystrophic EB from Melbourne, Australia passed away
Feb 15, 2023
NEW! Physiotherapy for EB: clinical practice guidelines
We are delighted to announce the publication of the "Physiotherapy for epidermolysis bullosa: clinical practice guidelines" in the...
Oct 7, 2021
Meet the team behind the creation of the supporting sexuality for people with EB CPG
Every CPG published is the result of 18-24 months of hard work and dedication by a volunteer panel of clinical and patient experts.
Jan 14, 2021
NEW! Supporting sexuality for people living with EB CPG now published
The "Supporting sexuality for people living with EB: clinical practice guidelines" have been published!
Jan 8, 2021
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