NEWS

Jan 10

NEW! Neonatal Care in EB: a Clinical Practice Guideline now published

It highlights management priorities in neonatal EB care and provide clinicians access to recommended treatment and preventative care options

Feb 15, 2023

In memoriam: Lisa Brains

It is with a heavy heart that we share the news that Lisa Brains, born with recessive dystrophic EB from Melbourne, Australia passed away

Oct 7, 2021

NEW! Physiotherapy for EB: clinical practice guidelines

We are delighted to announce the publication of the "Physiotherapy for epidermolysis bullosa: clinical practice guidelines" in the...

Jan 14, 2021

Meet the team behind the creation of the supporting sexuality for people with EB CPG

Every CPG published is the result of 18-24 months of hard work and dedication by a volunteer panel of clinical and patient experts.

Jan 8, 2021

NEW! Supporting sexuality for people living with EB CPG now published

The "Supporting sexuality for people living with EB: clinical practice guidelines" have been published!