NEWS

It is with a heavy heart that we share the news that a great legend in dermatology, Dr Jouni Uitto, passed away recently.

DEBRA International is delighted to welcome DEBRA South Africa as one of its newest member groups. DEBRA South Africa started in 2020...

During EB Awareness Week 2022, DEBRA International followed the endeavours of Dr Niraj Parajuli, a dermatologist from the National...

Ritu Jain, DEBRA International President travelled to Thailand to take part in the first-ever EB meeting, which was held with the support...

We are delighted to announce that the "Hand surgery and hand therapy clinical practice guideline for epidermolysis bullosa" has been...

Grant round: May 2018 Grant type: Project grant Grant recipient: DEBRA New Zealand Grant amount awarded: € 2,500.00 This grant supported...

July and August were busy months for DEBRA Colombia as they took part in several fundraising, and EB awareness raising and educational...

In May 2022, we had the great fortune of bringing together nine Spanish-speaking countries together for the 1st Ibero-American Meeting of...

El pasado mes de mayo tuvimos la gran fortuna de reunir a 9 países de habla hispana a través de un encuentro online. Se sumaron...

The 2022 All Priorities Call as well as the Ad-hoc Special Call for research proposals are now closed. We would like to thank the EB...

On 23 February 2022, DEBRA International had a webinar on the Pregnancy, Childbirth and Aftercare in epidermolysis bullosa...

DEBRA International was delighted to support DEBRA Indonesia team in holding the EB Awareness Month October 2021. In October 2021, EB...

DEBRA International is delighted to announce the First Art exhibition for EB children in Egypt and worldwide in cooperation with Yasmin...

On the 16 December 2021, the UN General Assembly has formally adopted the UN Resolution on Addressing the Challenges of Persons Living...

We are delighted to announce the publication of the "Physiotherapy for epidermolysis bullosa: clinical practice guidelines" in the...

Sesión virtual para pacientes y familias dedicada al proyecto sobre EB de Rare Commons

Take the survey in English: https://survey.sfu.ac.at/EB2021/?q=E_Qnr Take the online survey in German: https://survey.sfu.ac.at/EB2021/?q...

Rare Commons es un proyecto de investigación del Hospital Sant Joan de Déu de Barcelona que se centra en el estudio biomédico de las...

With 28th February 2021 marking Rare Disease Day, DEBRA Brasil and Illumina have joined forces to launch a pioneering and high impact...

DEBRA International is delighted to welcome DEBRA Belarus as one of its newest member groups. The Republican Public Association for Aid...

In 2019, DEBRA International was delighted to be able to support its member group, DEBRA BiH with a grant for their project to create and...

DEBRA International, through its EB Without Borders programme, was delighted to support the DEBRA Pakistan team in holding their first EB...

DEBRA International is delighted to welcome the Yasmin El Samra Foundation - DEBRA Egypt as one of its newest member groups. My name is...

Every CPG published is the result of 18-24 months of hard work and dedication by a volunteer panel of clinical and patient experts.