NEWS

Feb 22, 2023

EURORDIS Photo Awards 2023

'Smile to life, whatever the obstacles'

Feb 21, 2023

Congratulations to Amryt Pharma - recipients of a EURORDIS Black Pearl Award!

We are delighted to share that Amryt Pharma received the EURORDIS company award for patient engagement at the Black Pearl Awards

Feb 15, 2023

In memoriam: Lisa Brains

It is with a heavy heart that we share the news that Lisa Brains, born with recessive dystrophic EB from Melbourne, Australia passed away

Feb 10, 2023

Maria Korosta's letter to us all

Maria Korosta, a paramedic living in Korost, a village in Rivne Pblast, Ukraine with her 2 boys Maksym (13) and Mykola (8)

Feb 8, 2023

New shipment of humanitarian aid arrives in Ukraine

On 8th February 2023, DEBRA Ukraine received 200 kg worth of humanitarian aid for 60 EB patients living in the country.

Jan 31, 2023

In memoriam: Catina Bernardis

Jan 30, 2023

DEBRA Mexico's 1st EB Health Workshop

DEBRA Mexico's 1st EB Health Workshop. This workshop reflects the commitment of the global EB community to work together to promote health,

Jan 27, 2023

DEBRA Egypt celebrates EB Awareness Week 2022 on the Nile with EB patients and their families

DEBRA Egypt celebrates EB Awareness Week on the Nile with EB patients and their families.

Jan 25, 2023

Ukraine - a mother's note of hardship and hope

Jan 23, 2023

DEBRA Germany introduces a new video on EB wound care

DEBRA Germany introduces a new video on EB wound care.

Jan 20, 2023

DEBRA UK raises a phenomenal £140,000

DEBRA UK raises a phenomenal £140,000 at its annual Fight Night event!

Jan 17, 2023

EB Awareness Week 2022 in Croatia

EB Awareness Week 2022 in Croatia was full of various activities.

Jan 10, 2023

DEBRA Indonesia's theme for EB Awareness Week 2022

DEBRA Indonesia celebrates EB Awareness Week 2022 : get to know EB, Butterfly Children, and the EB Community in Indonesia

Jan 6, 2023

Remembering Prof Jouni Uitto

It is with a heavy heart that we share the news that a great legend in dermatology, Dr Jouni Uitto, passed away recently.

Dec 21, 2022

We welcome DEBRA South Africa as one of our newest member groups

DEBRA International is delighted to welcome DEBRA South Africa as one of its newest member groups. DEBRA South Africa started in 2020...

Dec 21, 2022

Taking DEBRA to new heights

During EB Awareness Week 2022, DEBRA International followed the endeavours of Dr Niraj Parajuli, a dermatologist from the National...

Dec 21, 2022

First-ever EB meeting held in Bangkok, Thailand

Ritu Jain, DEBRA International President travelled to Thailand to take part in the first-ever EB meeting, which was held with the support...

Nov 14, 2022

NEW! Hand surgery and hand therapy CPG for EB now published

We are delighted to announce that the "Hand surgery and hand therapy clinical practice guideline for epidermolysis bullosa" has been...

Oct 19, 2022

Epidemiology, pathological, and genetic characteristics of EB in New Zealand

Grant round: May 2018 Grant type: Project grant Grant recipient: DEBRA New Zealand Grant amount awarded: € 2,500.00 This grant supported...

Oct 19, 2022

DEBRA Colombia activities in July and August 2022

July and August were busy months for DEBRA Colombia as they took part in several fundraising, and EB awareness raising and educational...

Oct 19, 2022

1st Ibero-American Meeting of EB Online

In May 2022, we had the great fortune of bringing together nine Spanish-speaking countries together for the 1st Ibero-American Meeting of...

Oct 19, 2022

Primer Encuentro Iberoamericano de EB online

El pasado mes de mayo tuvimos la gran fortuna de reunir a 9 países de habla hispana a través de un encuentro online. Se sumaron...

Oct 19, 2022

International EB research: selection of high-quality research proposals 2022 has started

The 2022 All Priorities Call as well as the Ad-hoc Special Call for research proposals are now closed. We would like to thank the EB...

Apr 8, 2022

DEBRA International had a successful webinar on the Pregnancy, Childbirth and Aftercare in EB.

On 23 February 2022, DEBRA International had a webinar on the Pregnancy, Childbirth and Aftercare in epidermolysis bullosa...

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