NEWS

DEBRA Piel de Mariposa campaign for new nurse successfully raised €26,004.

The 4th Debra Brasil Congress held in Belo Horizonte marked a significant milestone in the awareness and research of Epidermolysis Bullosa.

DEBRA International wins the EURORDIS 2024 Members Award at the Black Pearl Awards

The popular booklet 'What Is EB/Was Ist EB?' is now available in it's newest translation, German, and free to download.

The DEBRA International Youth Council: update about what they’ve been up to and what they will focus their efforts on in 2024

The COSEB workshop was held by the COSEB Steering committee and DEBRA research managers of Austria, France, Ireland, Spain, and the UK.

DI has received the EURODIS Member Award for the support of the rare disease community affected by conflicts and natural disasters.

It highlights management priorities in neonatal EB care and provide clinicians access to recommended treatment and preventative care options

In 2023, DEBRA International saw many activities taking place with significant reduction in resources. The reliance on our Executive...

On Tuesday 12th December 2023, the DEBRA International's inaugural Roundtable of Companies held the first in-person group meeting in London.

The online survey takes 10-20 minutes to complete and is open only until December 31, 2023.

UK and international applications are invited from 1st February – 31st March 2024 for DEBRA UK project grant and small grant award...

FILSUVEZ topical gel is indicated for the treatment of partial thickness wounds in patients 6 months and older with Junctional and...

In 2023, DEBRA Austria/ EB Resnet launched a £2.5M funded joint call with partners LifeArc for research proposals targeting repurposing...

The DEBRA France Association organized its 4th annual meeting of epidermolysis bullosa professionals at the Necker Hospital in Paris.

DEBRA UK held a reception with Scottish Parliament as the latest step in their campaign to raise awareness & the need for government support

Contracts for two new research projects have been successfully issued by EB Resnet 2022.

Association Epidermolysis Bullosa is a new Bulgarian patient organization, created in July 2023 by patients and parents of EB children

The DEBRA Colombia Foundation held a note-worthy Patient Gathering Event in Bogota from May 5th to 7th for patients with EB

DEBRA Indonesia hosted a free webinar to increase awareness and knowledge of oral and dental health for EB patients

DEBRA Spain are delighted to announce they will be dedicating €100,000 to a research project to develop a topical gel to treat RDEB wounds.

Registration is now open for the WPA Asia Pacific Regional Meeting being held from 4th to 5th November 2023 in Dubai, UAE.

This clinical trial will see an existing licensed treatment for psoriasis clinically tested on children and adults with severe EB simplex

The event gave clinical, research, and industry updates on EB, successful collaborations with DEBRA, and building impactful patient groups.