NEWS

Dec 21, 2022

We welcome DEBRA South Africa as one of our newest member groups

DEBRA International is delighted to welcome DEBRA South Africa as one of its newest member groups. DEBRA South Africa started in 2020...

May 20, 2021

Sesión virtual para pacientes y familias dedicada al proyecto sobre EB de Rare Commons

May 7, 2021

Take part in an international research study on burden and resources in EB - online survey

Take the survey in English: https://survey.sfu.ac.at/EB2021/?q=E_Qnr Take the online survey in German: https://survey.sfu.ac.at/EB2021/?q...

Apr 22, 2021

Únete a Rare Commons para compartir tus experiencias y ayudar a mejorar el conocimiento de la EB

Rare Commons es un proyecto de investigación del Hospital Sant Joan de Déu de Barcelona que se centra en el estudio biomédico de las...

Mar 13, 2021

People with EB in Brazil have the opportunity to access genetic sequencing tests free of charge

With 28th February 2021 marking Rare Disease Day, DEBRA Brasil and Illumina have joined forces to launch a pioneering and high impact...

Mar 5, 2021

We welcome DEBRA Belarus as one of our three new member groups

DEBRA International is delighted to welcome DEBRA Belarus as one of its newest member groups. The Republican Public Association for Aid...

Feb 1, 2021

We welcome the Yasmin El Samra Foundation - DEBRA Egypt as one of our three new member groups

DEBRA International is delighted to welcome the Yasmin El Samra Foundation - DEBRA Egypt as one of its newest member groups. My name is...

Jan 14, 2021

Meet the team behind the creation of the supporting sexuality for people with EB CPG

Every CPG published is the result of 18-24 months of hard work and dedication by a volunteer panel of clinical and patient experts.