NEWS

Butterfly Summer 2024 was a week-long rehabilitation and educational retreat for those affected EB in Poland and Ukraine.

DI has received the EURODIS Member Award for the support of the rare disease community affected by conflicts and natural disasters.

The video demonstrates the sterling work by the group to support its members and EB patient community in times of extreme adversity.

Orphan Diseases of Ukraine received the EURORDIS Black Pearl Award: United for Ukrainians Living with a Rare Disease.

Maria Korosta, a paramedic living in Korost, a village in Rivne Pblast, Ukraine with her 2 boys Maksym (13) and Mykola (8)

On 8th February 2023, DEBRA Ukraine received 200 kg worth of humanitarian aid for 60 EB patients living in the country.

Ukraine - a mother's note of hardship and hope