The European Society for Dermatological Research (ESDR) Review
ESDR was held in Lisbon at the beginning of September. DEBRA Spain represented DEBRA International and held a talk about EB.
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NEWS
Sep 19
Take part: RHEACELL phase 3 clinical trial on systemic stem cell therapy for wound healing in RDEB/JEB
A new clinical trial is looking for 74 patients with severe forms of EB in renowned study centers across the world.
Sep 12
JLA study: A giant global thank you from DEBRA UK
A summary of the JLA study results, along with a big thank you from DEBRA UK for your participation.
Jul 15
Take part in new BUR-EB project to improve EB care in Europe
BUR-EB's new study aims to assess patients’ quality of life and the financial burden of EB on their families.
Feb 28
Debra Brasil 2023 Congress
The 4th Debra Brasil Congress held in Belo Horizonte marked a significant milestone in the awareness and research of Epidermolysis Bullosa.
Dec 21, 2023
Last call to get patients involved in the GRIDD study
The online survey takes 10-20 minutes to complete and is open only until December 31, 2023.
Dec 20, 2023
DEBRA UK's grant call for 2024
UK and international applications are invited from 1st February – 31st March 2024 for DEBRA UK project grant and small grant award...
Aug 21, 2023
Building smiles and empowering Butterfly Children- research and webinar on oral health and QoL
DEBRA Indonesia hosted a free webinar to increase awareness and knowledge of oral and dental health for EB patients
Aug 21, 2023
DEBRA Spain's work in funding research, international collaboration, and EB healthcare
DEBRA Spain are delighted to announce they will be dedicating €100,000 to a research project to develop a topical gel to treat RDEB wounds.
Aug 13, 2023
DEBRA UK announces its first approved drug repurposing clinical trial
This clinical trial will see an existing licensed treatment for psoriasis clinically tested on children and adults with severe EB simplex
Jul 14, 2023
LifeArc and DEBRA Austria launch £2.5m funding call for repurposing therapies for EB
This Special call will seek innovative proposals to develop therapeutics for severe unmet needs that can be brought rapidly to EB patients.
May 3, 2023
DEBRA Chile holds 2nd Research Day for EB patients and families
DEBRA Chile holds 2nd Research Day for EB patients and families.
Apr 30, 2023
New clinical trials online tool goes live
EB Research Network has created a new online tool to make tracking of clinical trials easier
Mar 10, 2023
DEBRA Ireland launches an EB Expert Panel to help shape its support and research priorities
An EB Expert Panel was launched by DEBRA Ireland to help shape their support and research priorities.
Feb 24, 2023
DEBRA UK commissions EB patient insight study
DEBRA UK has commissioned a specialist medical research agency to conduct a detailed EB patient insight study on their behalf.
Feb 21, 2023
Congratulations to Amryt Pharma - recipients of a EURORDIS Black Pearl Award!
We are delighted to share that Amryt Pharma received the EURORDIS company award for patient engagement at the Black Pearl Awards
Jan 6, 2023
Remembering Prof Jouni Uitto
It is with a heavy heart that we share the news that a great legend in dermatology, Dr Jouni Uitto, passed away recently.
Oct 19, 2022
Epidemiology, pathological, and genetic characteristics of EB in New Zealand
Grant round: May 2018 Grant type: Project grant Grant recipient: DEBRA New Zealand Grant amount awarded: € 2,500.00 This grant supported...
Oct 19, 2022
International EB research: selection of high-quality research proposals 2022 has started
The 2022 All Priorities Call as well as the Ad-hoc Special Call for research proposals are now closed. We would like to thank the EB...
May 7, 2021
Take part in an international research study on burden and resources in EB - online survey
Take the survey in English: https://survey.sfu.ac.at/EB2021/?q=E_Qnr Take the online survey in German: https://survey.sfu.ac.at/EB2021/?q...
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