NEWS

ESDR was held in Lisbon at the beginning of September. DEBRA Spain represented DEBRA International and held a talk about EB.

A new clinical trial is looking for 74 patients with severe forms of EB in renowned study centers across the world.

A summary of the JLA study results, along with a big thank you from DEBRA UK for your participation.

BUR-EB's new study aims to assess patients’ quality of life and the financial burden of EB on their families.

The 4th Debra Brasil Congress held in Belo Horizonte marked a significant milestone in the awareness and research of Epidermolysis Bullosa.

The online survey takes 10-20 minutes to complete and is open only until December 31, 2023.

UK and international applications are invited from 1st February – 31st March 2024 for DEBRA UK project grant and small grant award...

DEBRA Indonesia hosted a free webinar to increase awareness and knowledge of oral and dental health for EB patients

DEBRA Spain are delighted to announce they will be dedicating €100,000 to a research project to develop a topical gel to treat RDEB wounds.

This clinical trial will see an existing licensed treatment for psoriasis clinically tested on children and adults with severe EB simplex

This Special call will seek innovative proposals to develop therapeutics for severe unmet needs that can be brought rapidly to EB patients.

DEBRA Chile holds 2nd Research Day for EB patients and families.

EB Research Network has created a new online tool to make tracking of clinical trials easier

An EB Expert Panel was launched by DEBRA Ireland to help shape their support and research priorities.

DEBRA UK has commissioned a specialist medical research agency to conduct a detailed EB patient insight study on their behalf.

We are delighted to share that Amryt Pharma received the EURORDIS company award for patient engagement at the Black Pearl Awards

It is with a heavy heart that we share the news that a great legend in dermatology, Dr Jouni Uitto, passed away recently.

Grant round: May 2018 Grant type: Project grant Grant recipient: DEBRA New Zealand Grant amount awarded: € 2,500.00 This grant supported...

The 2022 All Priorities Call as well as the Ad-hoc Special Call for research proposals are now closed. We would like to thank the EB...

Take the survey in English: https://survey.sfu.ac.at/EB2021/?q=E_Qnr Take the online survey in German: https://survey.sfu.ac.at/EB2021/?q...