NEWS

Sep 12

JLA study: A giant global thank you from DEBRA UK

A summary of the JLA study results, along with a big thank you from DEBRA UK for your participation.

Jul 15

Take part in new BUR-EB project to improve EB care in Europe

BUR-EB's new study aims to assess patients’ quality of life and the financial burden of EB on their families.

Jan 16

DEBRA International wins EURODIS member award

DI has received the EURODIS Member Award for the support of the rare disease community affected by conflicts and natural disasters.

Dec 21, 2023

Last call to get patients involved in the GRIDD study

The online survey takes 10-20 minutes to complete and is open only until December 31, 2023.

Dec 20, 2023

DEBRA UK's grant call for 2024

UK and international applications are invited from 1st February – 31st March 2024 for DEBRA UK project grant and small grant award...

Dec 20, 2023

Chiesi Global Rare Diseases receives FDA approval for FILSUVEZ® topical gel for the treatment of EB

FILSUVEZ topical gel is indicated for the treatment of partial thickness wounds in patients 6 months and older with Junctional and...

Dec 18, 2023

LifeArc and DEBRA Austria's £2.5m funding call update

In 2023, DEBRA Austria/ EB Resnet launched a £2.5M funded joint call with partners LifeArc for research proposals targeting repurposing...

Dec 15, 2023

New international research projects from DEBRA Austria and EB Resnet

Contracts for two new research projects have been successfully issued by EB Resnet 2022.

Feb 8, 2023

New shipment of humanitarian aid arrives in Ukraine

On 8th February 2023, DEBRA Ukraine received 200 kg worth of humanitarian aid for 60 EB patients living in the country.

Feb 1, 2021

DEBRA Bosnia and Herzegovina launches picture book, Butterfly Boy

In 2019, DEBRA International was delighted to be able to support its member group, DEBRA BiH with a grant for their project to create and...