NEWS

Sep 25

DIYC at the DEBRA Care Conference in Atlanta

An update on the DEBRA International Youth Council (DIYC) attendance at the DEBRA Care Conference.

Sep 25

The European Society for Dermatological Research (ESDR) Review

ESDR was held in Lisbon at the beginning of September. DEBRA Spain represented DEBRA International and held a talk about EB.

Jul 25

DEBRA International attends the 2024 EWMA Conference

DEBRA International held two sessions and a booth at the 2024 EWMA in London.

Mar 25

DEBRA Croatia marks Rare Disease Day 2024

DEBRA Croatia marks Rare Disease Day with three new workshops for policy makers and students.

Feb 28

DEBRA groups attend ERN Skin's Patient Education Program and Scientific Meeting

ERN Skin held a Patient Education Program and Scientific Meeting for its members. 80 participants enrolled in the two day event.

Feb 28

Debra Brasil 2023 Congress

The 4th Debra Brasil Congress held in Belo Horizonte marked a significant milestone in the awareness and research of Epidermolysis Bullosa.

Feb 21

DEBRA International celebrates EURORDIS 2024 Members Award win at the Black Pearl Awards

DEBRA International wins the EURORDIS 2024 Members Award at the Black Pearl Awards

Aug 22, 2023

DEBRA Colombia's 29th Patient Gathering Event

The DEBRA Colombia Foundation held a note-worthy Patient Gathering Event in Bogota from May 5th to 7th for patients with EB

Aug 21, 2023

DEBRA Spain's work in funding research, international collaboration, and EB healthcare

DEBRA Spain are delighted to announce they will be dedicating €100,000 to a research project to develop a topical gel to treat RDEB wounds.

Aug 15, 2023

World Patient Alliance (WPA) Asia Pacific Regional Meeting 2023

Registration is now open for the WPA Asia Pacific Regional Meeting being held from 4th to 5th November 2023 in Dubai, UAE.

Aug 1, 2023

DEBRA International and GlobalSkin Symposium

The event gave clinical, research, and industry updates on EB, successful collaborations with DEBRA, and building impactful patient groups.

Jun 27, 2023

DEBRA France hosts its annual meeting of families in Paris

On April 1st, DEBRA France hosted its annual meeting in Paris. 30 families came together for the first time since the COVID-19 pandemic.

Jun 26, 2023

Celebrating two years of support in Indonesia: a recap of DEBRA Indonesia's events

The group has held several online and in-person events to cater for its EB patient and healthcare communities in the archipelagic country.

Jun 26, 2023

Charity run funds raised for DEBRA Germany

DEBRA Germany was one of four charitable causes that received funds raised from a charity run held on June 17th by the Lions Club Bidenkopf.

Jun 26, 2023

Funds raised for DEBRA Colombia through the HEELP Program

Heel Colombia has set forward a plan to rewrite the future with the purpose of transforming lives through different projects.

Jun 22, 2023

Prizes awarded to DEBRA representatives at GlobalSkin Conference 2023 ELEVATE

Two DEBRA reps were recipients of the Patient Leader Awards honoring leadership of GlobalSkin members at local, regional, and global levels.

Jun 22, 2023

DEBRA International attends GlobalSkin Conference 2023 ELEVATE

It proved a wonderful opportunity for various DEBRA/EB delegates to connect, strategise, and discuss priorities for their communities.

May 23, 2023

DEBRA Germany hosts EB families weekend

DEBRA Germany had a wonderful weekend with a group of EB families in Schmallenberg/ Sauerland.

May 16, 2023

EB Clinet Online Seminar: Nutritional Needs & Anemia in Adults with EB

The next EB Clinet Online Seminar is dedicated to the topic of 'Nutritional Needs and Anemia in Adults with EB'

May 4, 2023

DEBRA International attends the 2023 EWMA Conference