NEWS

Feb 8

Was Ist EB? booklet now available to download in German

The popular booklet 'What Is EB/Was Ist EB?' is now available in it's newest translation, German, and free to download.

Jan 10

NEW! Neonatal Care in EB: a Clinical Practice Guideline now published

It highlights management priorities in neonatal EB care and provide clinicians access to recommended treatment and preventative care options

Dec 20, 2023

Chiesi Global Rare Diseases receives FDA approval for FILSUVEZ® topical gel for the treatment of EB

FILSUVEZ topical gel is indicated for the treatment of partial thickness wounds in patients 6 months and older with Junctional and...

Apr 30, 2023

New clinical trials online tool goes live

EB Research Network has created a new online tool to make tracking of clinical trials easier