Sep 25DIYC at the DEBRA Care Conference in AtlantaAn update on the DEBRA International Youth Council (DIYC) attendance at the DEBRA Care Conference.
Sep 25The European Society for Dermatological Research (ESDR) ReviewESDR was held in Lisbon at the beginning of September. DEBRA Spain represented DEBRA International and held a talk about EB.
Jul 15Take part in new BUR-EB project to improve EB care in EuropeBUR-EB's new study aims to assess patients’ quality of life and the financial burden of EB on their families.
Mar 25DEBRA Croatia marks Rare Disease Day 2024DEBRA Croatia marks Rare Disease Day with three new workshops for policy makers and students.
Mar 6DEBRA International Youth CouncilIntroducing the DEBRA International Youth Council! Find out about their mission, their vision and meet their team.
Feb 28DEBRA groups attend ERN Skin's Patient Education Program and Scientific MeetingERN Skin held a Patient Education Program and Scientific Meeting for its members. 80 participants enrolled in the two day event.
Feb 28Successful DEBRA Piel de Mariposa campaign for a new EB nurseDEBRA Piel de Mariposa campaign for new nurse successfully raised €26,004.
Feb 28Debra Brasil 2023 CongressThe 4th Debra Brasil Congress held in Belo Horizonte marked a significant milestone in the awareness and research of Epidermolysis Bullosa.
Feb 8Was Ist EB? booklet now available to download in GermanThe popular booklet 'What Is EB/Was Ist EB?' is now available in it's newest translation, German, and free to download.