NEWS

Sep 25

DIYC at the DEBRA Care Conference in Atlanta

An update on the DEBRA International Youth Council (DIYC) attendance at the DEBRA Care Conference.

Sep 25

The European Society for Dermatological Research (ESDR) Review

ESDR was held in Lisbon at the beginning of September. DEBRA Spain represented DEBRA International and held a talk about EB.

Jul 15

Take part in new BUR-EB project to improve EB care in Europe

BUR-EB's new study aims to assess patients’ quality of life and the financial burden of EB on their families.

Mar 25

DEBRA Croatia marks Rare Disease Day 2024

DEBRA Croatia marks Rare Disease Day with three new workshops for policy makers and students.

Mar 6

DEBRA International Youth Council

Introducing the DEBRA International Youth Council! Find out about their mission, their vision and meet their team.

Feb 28

DEBRA groups attend ERN Skin's Patient Education Program and Scientific Meeting

ERN Skin held a Patient Education Program and Scientific Meeting for its members. 80 participants enrolled in the two day event.

Feb 28

Successful DEBRA Piel de Mariposa campaign for a new EB nurse

DEBRA Piel de Mariposa campaign for new nurse successfully raised €26,004.

Feb 28

Debra Brasil 2023 Congress

The 4th Debra Brasil Congress held in Belo Horizonte marked a significant milestone in the awareness and research of Epidermolysis Bullosa.

Feb 8

Was Ist EB? booklet now available to download in German

The popular booklet 'What Is EB/Was Ist EB?' is now available in it's newest translation, German, and free to download.