NEWS

Sep 19

Take part: RHEACELL phase 3 clinical trial on systemic stem cell therapy for wound healing in RDEB/JEB

A new clinical trial is looking for 74 patients with severe forms of EB in renowned study centers across the world.

Dec 21, 2023

Last call to get patients involved in the GRIDD study

The online survey takes 10-20 minutes to complete and is open only until December 31, 2023.

Dec 20, 2023

Chiesi Global Rare Diseases receives FDA approval for FILSUVEZ® topical gel for the treatment of EB

FILSUVEZ topical gel is indicated for the treatment of partial thickness wounds in patients 6 months and older with Junctional and...

Aug 13, 2023

DEBRA UK announces its first approved drug repurposing clinical trial

This clinical trial will see an existing licensed treatment for psoriasis clinically tested on children and adults with severe EB simplex

Apr 30, 2023

New clinical trials online tool goes live

EB Research Network has created a new online tool to make tracking of clinical trials easier