NEWS

May 27, 2023

DEBRA Egypt holds arts and crafts lessons for girls with EB that helps raise funds for those with EB

With the help of volunteers, the Foundation has started the arts and crafts lessons of candle making with the girls for the past two months.

May 24, 2023

DEBRA Italia and Fondazione Reb celebrate charity concert 'MUSIC AGAINST DIFFERENCES'

May 18, 2023

DEBRA UK completes its largest ever EB patient insight study

DEBRA UK completes EB patient insight study to better understand how EB impacts a patient's life and the type of care they receive.

May 4, 2023

DEBRA International attends the 2023 EWMA Conference

Mar 23, 2023

DEBRA Croatia celebrates Rare Disease Day

DEBRA Croatia celebrated Rare Disease Day with a radio & television feature, Zoom lectures, & took part in an event by Rare Disease Bahrain.

Mar 15, 2023

EURORDIS Black Pearl Awards 2023: United for Ukrainians Living with a Rare Disease

Orphan Diseases of Ukraine received the EURORDIS Black Pearl Award: United for Ukrainians Living with a Rare Disease.

Mar 14, 2023

DEBRA Colombia attends the 33rd National Congress of Dermatology

DEBRA Colombia was invited to attend the trade show with a stand to continue raising awareness of EB and care routes in Colombia.

Mar 13, 2023

Yasmin El Samra Foundation-DEBRA Egypt 'draws' interest in their annual competition

Every year, the Yasmin El Samra Foundation-DEBRA Egypt in cooperation with El Sawi Wheel Center in Cairo has held a drawing competition.

Mar 8, 2023

Celebration of the 15th World Day of Rare Diseases in Colombia

On 26th February, the 15th World Day of Rare Diseases was commemorated in the city of Bogotá, Colombia.

Mar 7, 2023

DEBRAs International and Egypt attend the MENA Organisation for Rare Diseases 2023 meeting in Dubai

Mar 1, 2023

First health workshop "Salud sin Fronteras" ("Health without Borders") held in Mexico

The free workshop was held over two days and aimed at healthcare professionals, the EB Community, patients, and families.

Feb 28, 2023

Nada Ashraf from Egypt shares her story this Rare Disease Day

Feb 28, 2023

Your members' chance to participate in “The story of my skin” Art Contest

The Art Contest called “The story of my skin” started on 28th February during International Rare Disease Day and will finish on 30th May.

Feb 24, 2023

DEBRA UK commissions EB patient insight study

DEBRA UK has commissioned a specialist medical research agency to conduct a detailed EB patient insight study on their behalf.

Feb 22, 2023

EURORDIS Photo Awards 2023

'Smile to life, whatever the obstacles'

Feb 21, 2023

Congratulations to Amryt Pharma - recipients of a EURORDIS Black Pearl Award!

We are delighted to share that Amryt Pharma received the EURORDIS company award for patient engagement at the Black Pearl Awards

Feb 10, 2023

Maria Korosta's letter to us all

Maria Korosta, a paramedic living in Korost, a village in Rivne Pblast, Ukraine with her 2 boys Maksym (13) and Mykola (8)

Feb 8, 2023

New shipment of humanitarian aid arrives in Ukraine

On 8th February 2023, DEBRA Ukraine received 200 kg worth of humanitarian aid for 60 EB patients living in the country.

Jan 27, 2023

DEBRA Egypt celebrates EB Awareness Week 2022 on the Nile with EB patients and their families

DEBRA Egypt celebrates EB Awareness Week on the Nile with EB patients and their families.

Jan 20, 2023

DEBRA UK raises a phenomenal £140,000

DEBRA UK raises a phenomenal £140,000 at its annual Fight Night event!