The European Society for Dermatological Research (ESDR) Review
ESDR was held in Lisbon at the beginning of September. DEBRA Spain represented DEBRA International and held a talk about EB.
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NEWS
Jul 25
DEBRA International attends the 2024 EWMA Conference
DEBRA International held two sessions and a booth at the 2024 EWMA in London.
Jun 18
Belgian Minister visits the EB-clinic at the University Hospital of Leuven
During the visit, Belgian Minister made an important announcement for better care for patients suffering with four types of rare diseases.
Mar 25
DEBRA Croatia marks Rare Disease Day 2024
DEBRA Croatia marks Rare Disease Day with three new workshops for policy makers and students.
Feb 28
DEBRA groups attend ERN Skin's Patient Education Program and Scientific Meeting
ERN Skin held a Patient Education Program and Scientific Meeting for its members. 80 participants enrolled in the two day event.
Feb 21
DEBRA International celebrates EURORDIS 2024 Members Award win at the Black Pearl Awards
DEBRA International wins the EURORDIS 2024 Members Award at the Black Pearl Awards
Jan 31
DEBRA groups hold COSEB workshop: working towards harmonization of outcomes in EB
The COSEB workshop was held by the COSEB Steering committee and DEBRA research managers of Austria, France, Ireland, Spain, and the UK.
Jan 16
DEBRA International wins EURODIS member award
DI has received the EURODIS Member Award for the support of the rare disease community affected by conflicts and natural disasters.
Dec 18, 2023
DEBRA France holds 4th annual EB professionals meeting in Paris
The DEBRA France Association organized its 4th annual meeting of epidermolysis bullosa professionals at the Necker Hospital in Paris.
Dec 18, 2023
DEBRA UK goes to Scottish Parliament
DEBRA UK held a reception with Scottish Parliament as the latest step in their campaign to raise awareness & the need for government support
Dec 15, 2023
New international research projects from DEBRA Austria and EB Resnet
Contracts for two new research projects have been successfully issued by EB Resnet 2022.
Jun 26, 2023
Celebrating two years of support in Indonesia: a recap of DEBRA Indonesia's events
The group has held several online and in-person events to cater for its EB patient and healthcare communities in the archipelagic country.
Jun 26, 2023
Charity run funds raised for DEBRA Germany
DEBRA Germany was one of four charitable causes that received funds raised from a charity run held on June 17th by the Lions Club Bidenkopf.
Jun 26, 2023
DEBRA South Africa takes part in Dermatology Nursing Workshop
The nurses were educated on EB and how to take care of babies' wounds with the resources available to them in their respective centres.
Jun 26, 2023
Funds raised for DEBRA Colombia through the HEELP Program
Heel Colombia has set forward a plan to rewrite the future with the purpose of transforming lives through different projects.
Jun 24, 2023
Empowering girls in Egypt
The objective of the foundation is to encourage EB patients interested in drawing and learning crafts.
Jun 22, 2023
Prizes awarded to DEBRA representatives at GlobalSkin Conference 2023 ELEVATE
Two DEBRA reps were recipients of the Patient Leader Awards honoring leadership of GlobalSkin members at local, regional, and global levels.
Jun 22, 2023
DEBRA International attends GlobalSkin Conference 2023 ELEVATE
It proved a wonderful opportunity for various DEBRA/EB delegates to connect, strategise, and discuss priorities for their communities.
Jun 18, 2023
Graeme Souness swimming the English Channel for DEBRA UK
Graeme set a lofty target of raising £1.1 million from the Channel swim, which has now been surpassed with well over £1.2 million raised.
May 31, 2023
DEBRA Spain works to ensure families receive the best possible level of care
From appealing for greater healthcare professional presence and attending the paediatric palliative care conference to 31 family visits.
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