NEWS

Sep 25

DIYC at the DEBRA Care Conference in Atlanta

An update on the DEBRA International Youth Council (DIYC) attendance at the DEBRA Care Conference.

Sep 25

The European Society for Dermatological Research (ESDR) Review

ESDR was held in Lisbon at the beginning of September. DEBRA Spain represented DEBRA International and held a talk about EB.

Sep 12

JLA study: A giant global thank you from DEBRA UK

A summary of the JLA study results, along with a big thank you from DEBRA UK for your participation.

Sep 1

DEBRA International President Ritu Jain elected as new RDI Council Officer

Rare Diseases International announced the results of the recent RDI Council elections, with DI president Ritu Jain elected as Secretary.

Jul 25

DEBRA International attends the 2024 EWMA Conference

DEBRA International held two sessions and a booth at the 2024 EWMA in London.

Jul 15

Take part in new BUR-EB project to improve EB care in Europe

BUR-EB's new study aims to assess patients’ quality of life and the financial burden of EB on their families.

Mar 6

DEBRA International Youth Council

Introducing the DEBRA International Youth Council! Find out about their mission, their vision and meet their team.

Feb 28

DEBRA groups attend ERN Skin's Patient Education Program and Scientific Meeting

ERN Skin held a Patient Education Program and Scientific Meeting for its members. 80 participants enrolled in the two day event.

Feb 21

DEBRA International celebrates EURORDIS 2024 Members Award win at the Black Pearl Awards

DEBRA International wins the EURORDIS 2024 Members Award at the Black Pearl Awards

Feb 8

Was Ist EB? booklet now available to download in German

The popular booklet 'What Is EB/Was Ist EB?' is now available in it's newest translation, German, and free to download.

Jan 31

Youth Council: To infinity and beyond

The DEBRA International Youth Council: update about what they’ve been up to and what they will focus their efforts on in 2024

Jan 16

DEBRA International wins EURODIS member award

DI has received the EURODIS Member Award for the support of the rare disease community affected by conflicts and natural disasters.

Dec 21, 2023

DEBRA International Roundtable of Companies first in-person group meeting

On Tuesday 12th December 2023, the DEBRA International's inaugural Roundtable of Companies held the first in-person group meeting in London.

Dec 20, 2023

Chiesi Global Rare Diseases receives FDA approval for FILSUVEZ® topical gel for the treatment of EB

FILSUVEZ topical gel is indicated for the treatment of partial thickness wounds in patients 6 months and older with Junctional and...

Aug 1, 2023

DEBRA International and GlobalSkin Symposium

The event gave clinical, research, and industry updates on EB, successful collaborations with DEBRA, and building impactful patient groups.

Jun 22, 2023

Prizes awarded to DEBRA representatives at GlobalSkin Conference 2023 ELEVATE

Two DEBRA reps were recipients of the Patient Leader Awards honoring leadership of GlobalSkin members at local, regional, and global levels.

Jun 22, 2023

DEBRA International attends GlobalSkin Conference 2023 ELEVATE

It proved a wonderful opportunity for various DEBRA/EB delegates to connect, strategise, and discuss priorities for their communities.

Jun 13, 2023

Video highlights of DEBRA Ukraine's activities supporting its members during war time

The video demonstrates the sterling work by the group to support its members and EB patient community in times of extreme adversity.

May 4, 2023

DEBRA International attends the 2023 EWMA Conference

Mar 7, 2023

DEBRAs International and Egypt attend the MENA Organisation for Rare Diseases 2023 meeting in Dubai