NEWS

Dec 21, 2022

Taking DEBRA to new heights

During EB Awareness Week 2022, DEBRA International followed the endeavours of Dr Niraj Parajuli, a dermatologist from the National...

Oct 19, 2022

Epidemiology, pathological, and genetic characteristics of EB in New Zealand

Grant round: May 2018 Grant type: Project grant Grant recipient: DEBRA New Zealand Grant amount awarded: € 2,500.00 This grant supported...

Oct 19, 2022

DEBRA Colombia activities in July and August 2022

July and August were busy months for DEBRA Colombia as they took part in several fundraising, and EB awareness raising and educational...

Oct 19, 2022

1st Ibero-American Meeting of EB Online

In May 2022, we had the great fortune of bringing together nine Spanish-speaking countries together for the 1st Ibero-American Meeting of...

Oct 19, 2022

Primer Encuentro Iberoamericano de EB online

El pasado mes de mayo tuvimos la gran fortuna de reunir a 9 países de habla hispana a través de un encuentro online. Se sumaron...

May 20, 2021

Sesión virtual para pacientes y familias dedicada al proyecto sobre EB de Rare Commons

May 7, 2021

Take part in an international research study on burden and resources in EB - online survey

Take the survey in English: https://survey.sfu.ac.at/EB2021/?q=E_Qnr Take the online survey in German: https://survey.sfu.ac.at/EB2021/?q...

Apr 22, 2021

Únete a Rare Commons para compartir tus experiencias y ayudar a mejorar el conocimiento de la EB

Rare Commons es un proyecto de investigación del Hospital Sant Joan de Déu de Barcelona que se centra en el estudio biomédico de las...

Mar 13, 2021

People with EB in Brazil have the opportunity to access genetic sequencing tests free of charge

With 28th February 2021 marking Rare Disease Day, DEBRA Brasil and Illumina have joined forces to launch a pioneering and high impact...

Mar 5, 2021

We welcome DEBRA Belarus as one of our three new member groups

DEBRA International is delighted to welcome DEBRA Belarus as one of its newest member groups. The Republican Public Association for Aid...

Feb 1, 2021

DEBRA Bosnia and Herzegovina launches picture book, Butterfly Boy

In 2019, DEBRA International was delighted to be able to support its member group, DEBRA BiH with a grant for their project to create and...

Feb 1, 2021

DEBRA International supports DEBRA Pakistan's first ever EB Awareness Week events

DEBRA International, through its EB Without Borders programme, was delighted to support the DEBRA Pakistan team in holding their first EB...

Feb 1, 2021

We welcome the Yasmin El Samra Foundation - DEBRA Egypt as one of our three new member groups

DEBRA International is delighted to welcome the Yasmin El Samra Foundation - DEBRA Egypt as one of its newest member groups. My name is...