NEWS

May 3, 2023

DEBRA Chile holds 2nd Research Day for EB patients and families

DEBRA Chile holds 2nd Research Day for EB patients and families.

Mar 23, 2023

DEBRA Croatia celebrates Rare Disease Day

DEBRA Croatia celebrated Rare Disease Day with a radio & television feature, Zoom lectures, & took part in an event by Rare Disease Bahrain.

Mar 14, 2023

DEBRA Colombia attends the 33rd National Congress of Dermatology

DEBRA Colombia was invited to attend the trade show with a stand to continue raising awareness of EB and care routes in Colombia.

Mar 13, 2023

Yasmin El Samra Foundation-DEBRA Egypt 'draws' interest in their annual competition

Every year, the Yasmin El Samra Foundation-DEBRA Egypt in cooperation with El Sawi Wheel Center in Cairo has held a drawing competition.

Mar 10, 2023

DEBRA Ireland launches an EB Expert Panel to help shape its support and research priorities

An EB Expert Panel was launched by DEBRA Ireland to help shape their support and research priorities.

Mar 8, 2023

Celebration of the 15th World Day of Rare Diseases in Colombia

On 26th February, the 15th World Day of Rare Diseases was commemorated in the city of Bogotá, Colombia.

Mar 7, 2023

DEBRAs International and Egypt attend the MENA Organisation for Rare Diseases 2023 meeting in Dubai

Mar 1, 2023

First health workshop "Salud sin Fronteras" ("Health without Borders") held in Mexico

The free workshop was held over two days and aimed at healthcare professionals, the EB Community, patients, and families.

Feb 28, 2023

Nada Ashraf from Egypt shares her story this Rare Disease Day

Feb 24, 2023

DEBRA UK commissions EB patient insight study

DEBRA UK has commissioned a specialist medical research agency to conduct a detailed EB patient insight study on their behalf.

Feb 10, 2023

Maria Korosta's letter to us all

Maria Korosta, a paramedic living in Korost, a village in Rivne Pblast, Ukraine with her 2 boys Maksym (13) and Mykola (8)

Feb 8, 2023

New shipment of humanitarian aid arrives in Ukraine

On 8th February 2023, DEBRA Ukraine received 200 kg worth of humanitarian aid for 60 EB patients living in the country.

Jan 30, 2023

DEBRA Mexico's 1st EB Health Workshop

DEBRA Mexico's 1st EB Health Workshop. This workshop reflects the commitment of the global EB community to work together to promote health,

Jan 27, 2023

DEBRA Egypt celebrates EB Awareness Week 2022 on the Nile with EB patients and their families

DEBRA Egypt celebrates EB Awareness Week on the Nile with EB patients and their families.

Jan 25, 2023

Ukraine - a mother's note of hardship and hope

Jan 23, 2023

DEBRA Germany introduces a new video on EB wound care

DEBRA Germany introduces a new video on EB wound care.

Jan 20, 2023

DEBRA UK raises a phenomenal £140,000

DEBRA UK raises a phenomenal £140,000 at its annual Fight Night event!

Jan 17, 2023

EB Awareness Week 2022 in Croatia

EB Awareness Week 2022 in Croatia was full of various activities.

Jan 10, 2023

DEBRA Indonesia's theme for EB Awareness Week 2022

DEBRA Indonesia celebrates EB Awareness Week 2022 : get to know EB, Butterfly Children, and the EB Community in Indonesia

Dec 21, 2022

We welcome DEBRA South Africa as one of our newest member groups

DEBRA International is delighted to welcome DEBRA South Africa as one of its newest member groups. DEBRA South Africa started in 2020...