NEWS

An update on the DEBRA International Youth Council (DIYC) attendance at the DEBRA Care Conference.

A summary of the JLA study results, along with a big thank you from DEBRA UK for your participation.

BUR-EB's new study aims to assess patients’ quality of life and the financial burden of EB on their families.

DEBRA Croatia marks Rare Disease Day with three new workshops for policy makers and students.

Introducing the DEBRA International Youth Council! Find out about their mission, their vision and meet their team.

ERN Skin held a Patient Education Program and Scientific Meeting for its members. 80 participants enrolled in the two day event.

DEBRA Piel de Mariposa campaign for new nurse successfully raised €26,004.

The 4th Debra Brasil Congress held in Belo Horizonte marked a significant milestone in the awareness and research of Epidermolysis Bullosa.

DEBRA International wins the EURORDIS 2024 Members Award at the Black Pearl Awards

The DEBRA International Youth Council: update about what they’ve been up to and what they will focus their efforts on in 2024

The COSEB workshop was held by the COSEB Steering committee and DEBRA research managers of Austria, France, Ireland, Spain, and the UK.

On Tuesday 12th December 2023, the DEBRA International's inaugural Roundtable of Companies held the first in-person group meeting in London.

In 2023, DEBRA Austria/ EB Resnet launched a £2.5M funded joint call with partners LifeArc for research proposals targeting repurposing...

The DEBRA France Association organized its 4th annual meeting of epidermolysis bullosa professionals at the Necker Hospital in Paris.

DEBRA UK held a reception with Scottish Parliament as the latest step in their campaign to raise awareness & the need for government support

Contracts for two new research projects have been successfully issued by EB Resnet 2022.

Association Epidermolysis Bullosa is a new Bulgarian patient organization, created in July 2023 by patients and parents of EB children

The DEBRA Colombia Foundation held a note-worthy Patient Gathering Event in Bogota from May 5th to 7th for patients with EB

DEBRA Indonesia hosted a free webinar to increase awareness and knowledge of oral and dental health for EB patients

DEBRA Spain are delighted to announce they will be dedicating €100,000 to a research project to develop a topical gel to treat RDEB wounds.