EVENTS

St John's DermAcademy are now offering 1-day virtual tickets for this year's Epidermolysis Bullosa Course on 3rd and 4th October 2024.

St John’s DermAcademy are running a unique two day study programme about the rare inherited condition Epidermolysis Bullosa (EB). This will be delivered by EB Clinical Nurse Specialists and leading Consultant Physicians and Surgeons from Guy’s and St Thomas’ NHS Foundation Trust and Great Ormond Street Hospital. The EB clinical teams from both centres work in collaboration with DEBRA UK.

The upcoming 5th Annual DEBRA Brasil Congress, scheduled to take place on October 4th and 5th, 2024, at Casa Melhoramentos in São Paulo is open to all.

DEBRA Poland are extending an invitation to hike Babiej Mountain, in Babiogórskiego National Park to raise awareness for EB. The hike will take place on 5th October 2024.

The unique event, which is part of the Debra Poland Association's Fragile Touch - Triathlon for Butterflies program, is open to all DEBRA groups. Taking part in this initiative is not only an opportunity to spend time together, but also to contribute meaningfully to the campaign for EB awareness.

The third session of the PE101 webinar series is hosted by DEBRA Singapore, DEBRA International & PFMD through PEOF+.

The session is crafted to help participants understand the perspectives, expectations, and constraints of different stakeholders in supporting patient advocates in their initiatives.

COSEB consortium members are invited to the COSEB Satellite Meeting on Wednesday October 16, 2024, from 17:00 to 19:30 CEST. This in-person meeting will take place in Vienna, Austria, as a pre-conference event to the EB Clinet conference. A digital option will also be available for those who cannot attend in person.

Registration now open for the 5th EB Clinet Conference. On 17-18 October 2024, key opinion leaders, clinical and care experts and pharmaceutical representatives will gather in Vienna to exchange knowledge and information on the latest clinical developments and best practice care for Epidermolysis bullosa patients.

PPP is excited to bring together key stakeholders from across the UK at a full-day, in-person conference that aims to examine how we can improve wound care by breaking silos, delivering on joint-up care and raising the salience of the challenges.