One of the main functions of DebRA International is to develop treatments for EB by coordinating the research programmes of the member groups and by facilitating close collaboration with the principal EB research teams. The main focuses of current research are gene therapy, cancer in EB, wound healing and clinical research aimed at symptom relief.

Major progress has been made, particularly over the period since 1991. The genetic defects responsible for forms of the three major types of EB have been identified and DebRA is determined to ensure that everything is done to enable this work to carry on.

Three substantial grants have been made for EB (or related) research by the European Union's Sixth Framework Programme to commence in 2005.  DebRA Europe is a partner in all three applications.

Overviews of the current state of research for the lay audience.

DebRA International coordinates the research grant programmes of the member groups and manages a centralised peer review process for all groups. Applicants should contact the national group for their country, if one exists, to enquire whether there is a national grant scheme and how to apply.

DebRA UK accepts applications from anywhere in the world and information and application forms can be downloaded here.

Whilst keeping the numbers of animals used in EB research to a minimum, some work using animals, mainly mice, is necessary to make progress. DebRA funded researchers are required to abide by national legislation and adopt the highest welfare standards.