| International EB Forum; www.internationalebforum.org
The International EB (Epidermolysis Bullosa) Forum
provides a comprehensive resource of treatment and care for those involved in the care of
EB patients. All Forums are only for Professionals, so All Forums are protected by
password and username.The main tool of the forum is email since this enables all
participants to quickly and easily contact every other member of the network. Every member
of the forum will be a part of a distribution e-post list on a centralised server. This
will always be up to date
Administrator / Project leader:
Heidi Ellingsen Silseth
Violvn 10D
1487 HAKADAL
Norway
Phone: +4745221884
Email: or
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AUSTRALIA
DebRA Australia.
|
Contact:
Michael Fitzpatrick (President)
PO Box 226, Pittsworth, Qld, Australia 4356.
Tel: +61 2 49558380
Web: http://www.debra.org.au
Email: or or |
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| DebRAA
VIC. |
Contact:
Deb Holmes
P.O. Box 186 Burwood VIC 3125
Tel: 03 9889 9780
Fax: 03 9889 1022 |
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| DebRA
NSW |
Contact:
Alison Schossow (Secretary)
Telephone 02 63
794 294
Email |
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DebRA QLD
|
Contact
President: Kathy Hagan
Tel: (07) 46 344 912
Web: http://www.debraqld.org/
Email: |
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DebRA
South Australia |
Contact:
DebRA A (SA) Inc PO Box 243 Kingston South Australia 5275 Australia
Tel: +61 (08) 87672871
Fax: +61 (08) 87673036
Mobile: +61 0427672871
Email: |
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AUSTRIA
DebRA Austria
|
Contact
Dr Rainer Riedl
DebRA-Austria, Heumarkt 27/3, 1030 Wien, Austria
Tel: +43 1 876 40 30
Email:
Web: www.DebRA-austria.org |
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BELGIUM
DebRA BELGIUM VZW ASBL
|
Contact:
Ingrid Jageneau
DebRA BELGIUM VZW - ASBL Vereniging voor Epidermolysis Bullosa
patiënten Association d'entraide pour l'Epidermolyse Bulleuse
Bilzersteenweg 336, 3700 Tongeren,Belgium
Tel: +32 012/23
72 46
Fax: +32 012/39 38 71
email:
web: www.DebRA-belgium.org |
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| BULGARIA
|
Contact:
Dr. I Yordanova
AEBE Dept of Dermatology & Venerology, Pleven Medical Institute, Pleven
Tel: +359 64 2 21 2 +359 64 2 91 53
Email: |
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| CANADA |
Contact: DebRA Canada Postal Office Fruitland, Box No. 11111, Stoney
Creek, Ontario L8E 5P9
Tel: +1 800 313 3012
Email:
Web: www.debracanada.org |
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CHILE
DebRA Chile
|
Contact:
Loreto Moore I.
Gerente General
DEBRA Chile.
tel (56-2) 356 0011
fax (56-2) 492 8388.
e-mail:
Web: www.debrachile.cl
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| COSTA RICA
|
Contact:
Judy Paskel-van der
Wielen ( Treasurer)
Fundación DebRA de Costa Rica
P.O.B. 69, SAn José 2120, Costa Rica
Tel: 506-244-3318
Fax: +506-244-3318
Email:
Web: www.debracr.org |
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| CROATIA
|
Contact:
DEBRA, drustvo oboljelih od bulozne epidermolize
Prilaz Gjure Dezelica 30, 10000 Zagreb, Croatia
tel. ++ 385 1 4555200
fax. ++ 385 1 4555199
e-mail
Web: www.debra-croatia.com |
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| CZECH REPUBLIC |
Contact:
Magda Hrudkova
DebRA Czech Republic
Department of Pediatric Dermatology
University Hospital Brno
Cernopolni 9
625 00 Brno
Czech Republic
Web: www.debra-cz.org
e-mail:
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| DENMARK |
Contact:Jan Madsen
Email
Jesper Bonning
Email |
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FINLAND
DebRA Finland |
Contact:
Liina Harkonen,
Pyynikintori 8A3, 33230 Tampere, Finland,
Tel: (044) 5577065
Email
Web: www.iholiitto.fi |
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FRANCE
Epidermolyse Bulleuse
Association D'Entraide
EBAE
(DebRA France) |
Contact:
Pascal BOURGET, 20 ruelle du
jardin Ravillonet - 95470 SAINT WITZ
Email:
Web: www.ebae.orgSecrétariat permanent
: Mireille NISTASOS, "La Mutuelle du Midi" BP 31866 13221MARSEILLE CEDEX 01 Email : |
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| GERMANY
|
IEB-DebRa
Deutschland
Frau Bettina Höflein
Mühlweg 23
D-35216 Biedenkopf
Germany/DeutschlandTel 00 49(
0) 6461/ 9 26 08 87
00 49 (0) 6461/ 9 26 08 92
Email:
Web: www.ieb-DebRA.de |
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| HONG KONG |
Contact:
Ted & Phoebe Leung Rm 504, Fu Yat House, Tai Wo Hau Est. Tsuen Wan,
Email: |
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| HUNGARY
|
Contact:
Márta Csikós MD
Semmelweiss University of Medicine, Dept of Dermatology & Venereology,
Budapest, Mária u. 41 H-1085
Tel: +36 1 266 0465
Fax: +36 1 210 4874 www.debra.hu |
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IRELAND
DebRA Ireland,
|
Contact:
Margaret Webb
DEBRA Ireland 3/4 Upper Pembroke Street, Dublin 2.
Tel: +353 1 678 5044
Fax: +353 1 678 5232
Email:
Wesite www.debraireland.org |
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ITALY
DebRA Italy.
|
Contact:
Paola Zotti
Email:
or
Website http://www.debraitaliaonlus.org/
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Debra
Südtirol -
Alto Adige |
Contact:
Isolde Faccin bRienzweg 12/d - BZ I-39034 Toblach
Tel. +39 0474 972004
Fax. +39 0474 972887
Email:
Web: http://www.debra.it |
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| JAPAN
|
Contact:
Ms. Emiko Sato ASEBI-KAI 3-18-9-204, Sengoku, Bunkyo-ku, Tokyo 112
Tel: +81 339437008
Fax +81339446460 |
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| MEXICO
|
Contact:
Dr Julio Salas Fundación DebRA Mexico AC,
Nahua 162 Azteca, Guadaloupe N.L. 67150
Tel: +52 367 6060
Email: |
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| NETHERLANDS
|
Contact:
Yvonne Sellies (Consultant)
DEBRA NEDERLAND.
Postbus 3160 3760 DD SOEST The Netherlands
Tel: 0031 35 6018977
Email:
Web: www.DebRA.nl |
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NEW ZEALAND
DebRA
New Zealand
|
Contact: Director: Anna Kemble Welch,
DebRA NZ, 123 Daniell Street,Newtown, Wellington, New Zealand.
Phone: +64 4 389 7316
Fax:
04 389 7316
Email:
Web: www.DebRA.org.nz |
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NORWAY
DebRA Norge
|
Contact:
DebRA Norway co Ruth Bernssen Bø, 4365 Nærbø Norway
Tel: +47 0047 3279 4387
Email:
Web: www.DebRA.no |
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| POLAND |
Contact:
DebraPolska- Fragile Touch
Przemyslaw Sobieszczuk ,
Magda Onyszko-Skowron
Stowarzyszenie "Kruchy Dotyk"
M.C. Sklodowskiej 127/2/29
Piekary Slaskie Polska
41-949
Tel: 0501 316 217 / 0504 262 871
Fax: 032 381 53 17
Email:
Web: www.debra-kd.pl |
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| ROMANIA
|
Contact:
Debra Association
dr.Sanda Florian
Children Hospital Brasov str Nicopole 43-45 Brasov, Romania.
Tel: 0040 268 41 51 30 ext
159
Email: |
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| SLOVENIA |
Contact:
DEBRA Slovenia
Motnica 3, 1236 TRZIN
Tel: ++386(0)31 348 303
Fax: ++386(0)3 800 14 16
Email: . |
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| SOUTH AFRICA
|
Contact:
Penny West, 170 Curzon Road, Bryanston, GautengTel +46 (0)11 799 7111
Email: |
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| SWEDEN
|
Contact:
Malin Netz
Vintergatan 15 B, 172 69 SUNDBYBERG, SwedenTel: +46 (0)8 652 67 15
Email:
Web: www.debra-sweden.org |
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| SWITZERLAND
|
Contact:
Tanja Pauli. DebRA CH, Birkenweg 102, 3123 Belp. Switzerland
Tel: ++41 31 879 14 88
Email:
Web: http://www.epidermolysisbullosa.ch/
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| SPAIN
|
Contact: Evanina
M Makow AEBE
– DebRA SPAIN
C/ Real. Conjunto Puertogolf. Apartamento 36. 29660 Nueva Andalucía. Málaga.
Tel/Fax 952
816434
Email:
Web: www.aebe-DebRA.org |
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| UNITED KINGDOM
|
Contact:
John Dart DebRA UK
13 Wellington Business Park, Dukes Ride, Crowthorne, Berkshire RG45 6LS
Tel: +44 1344
771961
Fax: +44 1344
762661
Email:
Web: http://www.DebRA.org.uk |
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| USA
|
Contact:
Mary Sprague (Executive Director)
DebRA of America inc, 5 W. 36th St. Suite 404 New York,
NY 10018
Tel: +1:
(212)868-1573
Fax: +1: (212)868-9296
Email: staff
Web: http://www.DebRA.org |
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| YUGOSLAVIA
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Contact
to be advised"
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